ZTTK SON-SHINE FOUNDATION

Promoting the interests of individuals with ZTTK Syndrome and their families; promoting public interest in and awareness of ZTTK Syndrome; promoting public interest in and awareness of the need to provide opportunities for individuals with ZTTK Syndrome to work, be educated, and participate in community activities; promoting public interest in and awareness of the need to provide support and services for individuals with ZTTK Syndrome to participate in educational, work, and community activities; promoting public interest in and awareness of the need for research into the diagnosis and treatment of ZTTK Syndrome and the care of individuals with ZTTK Syndrome; promoting public interest in and awareness of the need for funding for research into the diagnosis and treatment of ZTTK Syndrome and the care of individuals with ZTTK Syndrome; promoting collaboration among the scientific, research, medical, and educational communities and individuals with ZTTK Syndrome and their families to achieve advances in the fields of medicine, the diagnosis and treatment of ZTTK Syndrome, and the care of individuals with ZTTK Syndrome; promoting the exchange of information and resources among the scientific, research, medical, and educational communities and individuals with ZTTK Syndrome and their families to achieve advances in the fields of medicine, the diagnosis and treatment of ZTTK Syndrome, and the care of individuals with ZTTK Syndrome

Charitable foundation services, namely, providing funding for medical and scientific research in the United States and internationally; accepting and administering monetary charitable contributions to fund medical and scientific research in the United States and internationally; charitable services, namely, providing financial assistance to support programs and services for individuals with ZTTK Syndrome and their families; accepting and administering monetary charitable contributions to provide financial assistance to support programs and services for individuals with ZTTK Syndrome and their families; charitable fundraising services

Providing a website featuring news and information in the fields of medicine, medical and scientific research, the diagnosis and treatment of individuals with ZTTK Syndrome, and the health care of individuals with ZTTK Syndrome; providing news and information in the fields of medicine, medical and scientific research, the diagnosis and treatment of individuals with ZTTK Syndrome, and the health care of individuals with ZTTK Syndrome; providing a website that provides links to the websites of others featuring news and information in the fields of medicine, medical and scientific research, the diagnosis and treatment of ZTTK Syndrome, and the health care of individuals with ZTTK Syndrome; providing links to the websites of others featuring news and information in the fields of medicine, medical and scientific research, the diagnosis and treatment of ZTTK Syndrome, and the health care of individuals with ZTTK Syndrome

Providing patient advocate services in the fields of medicine related to ZTTK Syndrome, the diagnosis and treatment of ZTTK Syndrome, and the care of individuals with ZTTK Syndrome; providing personal support services for individuals with ZTTK Syndrome and their families, namely, emotional support, companionship, help with medical forms, providing information about resources for coping with the emotional effects of a diagnosis of ZTTK Syndrome, providing information about coping strategies for individuals with ZTTK Syndrome and their families, coordinating and fostering relationships between families with similar medical needs and experiences; personal advocacy services to meet the needs of individuals with ZTTK Syndrome