RARE DISEASE WEEK ON CAPITOL HILL

Promoting public awareness of rare diseases and the interests of rare disease patients and caregivers by means of public advocacy; promoting public awareness of rare diseases through an annual event; promoting awareness of the need for policy changes and legislative action to benefit the rare disease community; promoting collaboration between the scientific, research, and medical communities to achieve advances in the field of rare diseases; arranging and conducting lectures and workshops in the field of rare diseases; arranging meetings to facilitate Congressional awareness in the field of rare diseases