NAVIGATING RARE

Downloadable electronic publications in the nature of books, manuals, booklets, pamphlets and brochures in the field of lifestyle topics for patients living with rare diseases, their caregivers and patient advocacy groups

Arranging educational programs, namely, workshops, seminars, conferences, meetings, and programs that provide lifestyle-related information to patients living with rare diseases, their caregivers, and patient advocacy groups; Providing online non-downloadable videos in the field of lifestyle related information to patients living with rare diseases, their caregivers, and patient advocacy groups