GRDR

Maintaining a common data registry of de-identified patient data in the field of rare and genetic diseases

Biomedical research services, namely, conducting biomedical research in the field of rare and genetic diseases; providing temporary use of non-downloadable web-based computer software for data integration, exchange, and analysis used in the field of biomedical research of rare and genetic diseases using standards-based data management, common terminologies, and common data elements; providing a website featuring information on biomedical research of rare and genetic diseases

Providing an on-line computer database featuring de-identified patient data in the field of rare and genetic diseases