CORNELIA DE LANGE SYNDROME FOUNDATION

Administration and management of research grants; Arranging and conducting business conferences; Charitable services, namely, organizing and conducting volunteer programs and community service projects; Charitable services, namely, promoting public awareness of Cornelia de Lange syndrome; Organizing and conducting charity auctions for charitable fundraising purposes; Organizing and developing charitable projects that aim to provide funding, support, and raise awareness of programs and initiatives that ensure accurate and early detection of Cornelia de Lange syndrome, promote research into the causes and manifestations of the syndrome, and help people with a diagnosis of the syndrome and other similar characteristics make informed decisions throughout their lives; Promoting awareness of Cornelia de Lange syndrome; Promoting collaboration within the scientific, research and medical communities to achieve advances in the field of healthcare; Promoting collaboration within the scientific, research and provider communities to achieve advances in the field of Cornelia de Lange syndrome diagnosis, management, and treatment; Promoting the exchange of information and resources within the scientific research and medical communities to achieve advances in the field of healthcare

Accepting and administering monetary charitable contributions to fund medical research; Charitable foundation services, namely, providing fundraising activities to support medical research and procedures for those in need; Charitable fundraising; Charitable fundraising services; Charitable fundraising services by means of a golf event; Charitable fundraising services by means of an entertainment event; Charitable fundraising services by means of organizing and conducting special events; Charitable fundraising services by means of running and walking events; Charitable fundraising services for promoting research, education and other activities relating to Cornelia de Lange syndrome; Charitable fundraising services for Cornelia de Lange syndrome; Charitable fundraising to support funding and awareness of programs and initiatives that ensure accurate and early detection of Cornelia de Lange syndrome, research into the causes and manifestations of the syndrome, and assistance for people with a diagnosis of the syndrome and other similar characteristics to make informed decisions throughout their lives