CARE-FOR-RARE

Monetary affairs, namely, financial planning services, accepting and administering monetary charitable contributions; charitable fundraising services, namely, collection of monetary donations for beneficent and charitable purposes; financing of research projects and clinical studies of others; administering monetary charitable contributions for destitute, socially deprived and needy people and families for the purpose of procuring and providing benefits-in-kind, financial advice and consultancy services, namely, for the benefit of people, in particular children, having rare diseases, rare genetically caused diseases, in particular of the blood and the immune system, congenital neutropenia, congenital disorders of the immune system and inflammatory bowel syndrome, and for the benefit of their families and relatives, in particular in emerging and developing countries and administering monetary charitable contributions for students and physicians, pharmacists and natural scientists for further education and training purposes in the field of rare diseases affecting humans

Educational services, namely, providing online instruction in the field of science, medicine, healthcare, hygiene and nutrition via an online website, and further training services in the field of science, hygiene, nutrition, healthcare and medicine; providing medical educational services, namely, classes, seminars and webinars in the field of hygiene, nutrition, rare diseases, rare genetically caused diseases, diseases of the blood and the immune system, congenital neutropenia, congenital disorders of the immune system and inflammatory bowel syndrome and providing medical information; providing a website featuring non-downloadable electronic publications in the nature of books, magazines and brochures in the field of science, medicine, healthcare, hygiene, nutrition, rare diseases, rare genetically caused diseases, diseases of the blood and the immune system; educational services, namely, providing further education in the field of science via classes, seminars and workshops and organization of educational events in the field of science, medicine, healthcare, hygiene and nutrition; organization of artistic performances and art exhibitions, vernissages and finissages; publication of printed matter in electronic form except for advertising purposes, in the field of rare diseases, rare genetically caused diseases, in particular of the blood and immune system, congenital neutropenia, congenital disorders of the immune system and inflammatory bowel diseases affecting humans, in particular children

Scientific and biological research and scientific laboratory services, technological research in the field of medicine, biology, genetics, healthcare, chemistry and biochemistry and technological consulting services in the field of medical diagnosis systems and medical therapeutic systems; clinical and diagnostic research in the field of medicine and genetics, chemical, biological, genetic engineering, molecular biological and biotechnological research; genetic engineering services, conducting of clinical studies for pharmaceutical preparations, research and development services in the field of immunology, gene therapy and stem cell research; conducting scientific investigations for medical purposes; drawing up scientific expert opinions, namely, scientific, medical, clinical therapy and technical surveying; scientific research, biological, chemical and medical research; medical and scientific research featuring the development of new therapies, in particular pharmacotherapy, cell and gene therapy; basic scientific research, therapy development and research services in the field of rare diseases, rare genetically caused diseases, in particular of the blood and immune system, congenital neutropenia, congenital disorders of the immune system and inflammatory bowel diseases affecting humans, in particular children

Medical services, medical diagnostic services for testing and analysis purposes; out-patient and mobile nursing services, medical and therapeutic care, therapy consultancy for medical purposes, providing and arranging of medical care, in the field of rare diseases, rare genetically caused diseases, in particular of the blood and immune system, congenital neutropenia, congenital disorders of the immune system and inflammatory bowel diseases affecting humans, in particular children; medical testing for diagnostic purposes, namely, clinical, immunological, molecular biological, biochemical, chemical and genetic diagnostics in the field of rare diseases, rare genetically caused diseases, in particular of the blood and immune system, congenital neutropenia, congenital disorders of the immune system and inflammatory bowel diseases; psychosocial counseling