ALPHANET

Downloadable electronic publications in the nature of informational and educational materials, namely booklets, in the field of Alpha-1 Antitrypsin Deficiency; downloadable multimedia files containing artwork, text, audio and video relating to Alpha-1 Antitrypsin Deficiency; pre-recorded electronic media in the field of Alpha-1 Antitrypsin Deficiency

Printed informational and educational materials, namely, booklets and reference guides, in the field of Alpha-1 Antitrypsin Deficiency

Charitable services, namely, providing financial support for clinical research to improve the lives of individuals affected by Alpha-1 Antitrypsin Deficiency

Education services, namely, providing classes, seminars, and workshops in the field Alpha-1 Antitrypsin Deficiency; providing on-line publications in the nature of guides and newsletters in the field of Alpha-1 Antitrypsin Deficiency; training of study staff in the field of Alpha-1 Antitrypsin Deficiency and clinical trials

Providing medical and scientific research information in the field of Alpha-1 Antitrypsin Deficiency; consultation services in the field of facilitating and conducting clinical trials involving human subjects of new treatment options for individuals affected by Alpha-1 Antitrypsin Deficiency in the nature of identifying qualified study sites and researchers and encouraging study enrollment; providing quality assurance services in the field of clinical trials by generating and monitoring study data and documentation thereof for quality assurance purposes

Health care services, namely, disease management for individuals affected by Alpha-1 Antitrypsin Deficiency; providing support and assistance services to inform individuals affected by Alpha-1 Antitrypsin Deficiency about the range of possible diagnoses and therapies to improve the quality of their lives; providing links to the web sites of others featuring information about the diagnosis, management and treatment of Alpha-1 Antitrypsin Deficiency; providing health and medical care information to individuals affected by Alpha-1 Antitrypsin Deficiency about the range of possible diagnoses and therapies to improve the quality of their lives, Providing support and assistance in the nature of health and wellness counseling to individuals affected by Alpha-1 Antitrypsin Deficiency

Providing support and assistance in the nature of counseling to individuals affected by Alpha-1 Antitrypsin Deficiency; Identifying qualified study sites, namely, inspection of laboratory research facilities for safety purposes